tag:blogger.com,1999:blog-7989439718661069957.post1858839359252226544..comments2023-10-03T09:17:04.461-04:00Comments on The Murphy Family: Amieehttp://www.blogger.com/profile/02351596263284773109noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-7989439718661069957.post-67619539829476387052010-07-01T00:06:19.579-04:002010-07-01T00:06:19.579-04:00Hey I found your blog and read this about the gtub...Hey I found your blog and read this about the gtube. I have cystic fibrosis. I had to get a gtube lasst year. I HATED the idea. I was already drinking supplements and on a high cal diet and it wasn't working so why? Well I got my gtube and I LOVE IT! I have put on 20lbs. KEPT it on. I do the feeds at night, eat normal during the day. I get about 1500 cals at night (3, 500cal cans) Some mornings I felt nauseous at first. Try and get her to eat bread, it helps. Also I started out not so hungry until around noon (which is normal) I got used to it after a while. <br /><br />Also if you get one, go with the AMT brand. The connectors are WAY better. They don't leak as bad as the mickey stuff does. <br /><br />If you have ANY questions please email me at jbrandonaw@yahoo.com. <br /><br />I would love to talk to you about it b/c I knwo how big of a decision it is -and how life changing it feels.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7989439718661069957.post-5354794334591654802010-06-04T23:58:43.502-04:002010-06-04T23:58:43.502-04:00I am praying for Kate and you guys. It was so sca...I am praying for Kate and you guys. It was so scary when they first let me out of the hospital with IV medication, I was so scared to do something wrong and I was so tired I didn't think I could actually do it. It does get better and it does get easier! I also lost a lot of weight pre-transplant, and have gained some back after the transplant. <br />Make sure to get some "me" time to clear your head. <br />I make blankets for www.projectlinus.org (it gives hand made blankets to ill children), I would like to make one fore Kate, what are her favorite colors or things?Allie Weesehttps://www.blogger.com/profile/02117764718013845956noreply@blogger.comtag:blogger.com,1999:blog-7989439718661069957.post-16427831574570155942010-06-03T23:24:55.518-04:002010-06-03T23:24:55.518-04:00Im glad you all got to go home! Justin, Logan, Mas...Im glad you all got to go home! Justin, Logan, Mason and I are all thinking of you! We love you all tons!! We will be sending our great thoughts your way everyday. I hope Katy girl gains that weigh. XO The Murphys of Lowell!Kristyna!https://www.blogger.com/profile/00235609090857806641noreply@blogger.comtag:blogger.com,1999:blog-7989439718661069957.post-79934243457438234672010-06-03T22:20:15.509-04:002010-06-03T22:20:15.509-04:00Home is the best place of all! Glad you are all t...Home is the best place of all! Glad you are all there:)Nelhttps://www.blogger.com/profile/16563529770956496555noreply@blogger.comtag:blogger.com,1999:blog-7989439718661069957.post-8916611420937902462010-06-03T21:52:38.090-04:002010-06-03T21:52:38.090-04:00Praying for your sweet baby girl and family.Praying for your sweet baby girl and family.Mommarahttps://www.blogger.com/profile/04710681247903706889noreply@blogger.comtag:blogger.com,1999:blog-7989439718661069957.post-20943435499493111392010-06-03T21:25:02.640-04:002010-06-03T21:25:02.640-04:00Glad you are home and that Katy is tolerating the ...Glad you are home and that Katy is tolerating the NG tube. New normals are never easy at first.McKay Familyhttps://www.blogger.com/profile/15987296726209754663noreply@blogger.com