For two years our life has been a constant what if…. when… how?
Should we do this? Should we not? Do you have your cell phone? What was Katy’s weight today? I hope they don’t admit her this time. We’re admitted, should we stay or should we go?
As hard as it has been, it has been equally wonderful. We have lived life, as one might live knowing we were on borrowed time. Living with that mindset does change how you see things and do things and I think it has been one of the best parts of this journey. We live for today. We do all we can to fill our days with happy memories. Because the truth is no one knows what tomorrow will bring for any of us. I am confident that Katy is going to come through transplant and be better than ever…but if she doesn’t I know that we have given her an amazing life. She has been loved and she knows how loved she is. She has changed every person that has ever met her and even the ones that just know her through our blog. She has done amazing things and has brought awareness. Here is a glimpse of what we have done is the two years we have had… the two years that we were able to squeak in with diligent care so she had the best chance at quality of life.
1 comment:
I worked in the cardiology clinic at CHB for a few years and was lucky enough to meet Katy and your family. Just a few weeks ago when cleaning out my wallet I finally found the little paper you gave me when I left to go back to school with your blog information. I instantly logged on and was so excited to see such gorgeous and happy pictures. I frequently think about Katy and keep her and your family in my positive thoughts. In clinic, her big smile, hugs, and princess obsession always made my day. She truly is one of the strongest little girls I have ever met. Your family is inspiring and I wish you nothing but the best. If there is anything I can ever do (babysitting, toys, visits....etc) I would love to. Stay strong and please send Katy my love (if she remembers) :)
Leah
Lsaul37@gmail.com
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