Wednesday, June 25, 2014

Ruling Things Out…

Yesterdays trip to the Cath lab gave us some answers. We learned that Katy’s Coronary arteries are good.  This is GREAT news…had they shown Coronary disease the answer would have been clear and we would be listing Katy for another heart transplant.

So after they checked her coronaries they went in search of another reason for her tachycardia (high heart rate). The EPS (cardiac electrophysiology study) which is the study of the electrical piece of the heart showed that Katy’s Sinus Node which is the hearts natural pace maker it is what controls the heart rate… is the source of the issue. 

We had hoped that there would be a “hot spot” in the heart that was causing the tachycardia, if that was the case they would have done an ablation to that spot and immediately fixing the fast heart rate. However, it was not the case and they looked high and low to find a spot other than the Sinus Node.

The current plan is to start Katy on a beta blocker to bring down her heart rate.  If that does not work they will go back in and ablate the Sinus Node… however that is not as easy as if it was a “hot spot” since there is a chance they could zap it too much and cause a too slow heart rate which would result in Katy needing to have a pace maker placed.  Basically it is a risky procedure which is why we hope we can treat with medication. 

It takes time to find the correct dosage of beta blockers and we are looking at at least another week inpatient if not longer. 

A day in the the life at Boston Children's Hospital:

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Lots of i-spy books and laps with daddy!

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Lots of visits to Au Bon Puke Pan

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Me… I’m still growing a baby… 23 weeks and getting bigger by the day  hour.2014-06-23 11.03.35

Perfecting our Uno Skills… Katy is a card shark!2014-06-23 18.48.02

Lots of time for mindless knitting2014-06-24 17.35.02

and naps

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Thanks for your love, prayers and kind words.  They mean the world to us.  Just another chapter in our journey.

This face is worth it all…

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Oh and bubba… he is having a blast! He spent most of the week with Justin, Tyna and all the boys and is now at Auntie Dars enjoying time with his cousins from Illinois…

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I miss him like crazy… but his smile makes my heart happy!

1 comment:

mom2joy said...

Praying the medication works. She is so darling and her smile--well, it is priceless--just like her.

Carolyn (in Las Vegas)