Admission Day 2- Katy is being treated for rejection. The kind of rejection she has at this time is unknown. There are two possibilities, Cellular and Humoral (antibody).
What we do know is that Katy’s heart is extremely enlarged. This was evident both on x-ray and echo. She has a gallop that is heard on physical exam that was VERY concerning to cardio. The pressures in her Right ventricle are high and her heart is working very hard to squeeze in addition to that she has a leaky valve.
What is the plan?
As of now we are treating Katy for both forms of rejection until the results from her biopsy are back later today. We won’t know until she is biopsied again in two weeks if irreversible damage has been done to her new heart. She is being given high doses of steroids, started on IVIG treatment, Milrionone to support the heart and Lasix to help get any extra fluid off.
How did this happen? What caused Katy to reject her new heart?
It’s really not a how or a why…it’s more like a when would it happen. Katy’s body is going to forever try to reject this heart. Her body will always see it as foreign. We try and trick her body into accepting this heart by giving her antirejection meds. That are very carefully balanced and easily thrown off by a subtle weigh gain or an illness. It is impossible to prevent rejection…it is part of the journey.
What is the risk to Katy?
The risks are very scary. Right now Katy has a fragile heart that is not working well. So the main risk and most scary risk is cardiac arrest. That is why we are in the ICU. Additional risks are irreparable damage to her new heart. This would be devastating, and unlikely given that we hopefully caught it early.
How is Katy feeling?
If it wasn’t for a high fever ( most likely unrelated to her rejection) we wouldn’t have known Katy was sick. Currently she is extremely agitated and easily aggravated mostly attributed to the high doses of steroids and being stuck back in the hospital. Who could blame her. She has a central line in her neck which is extremely uncomfortable… but other than that she is doing OK.
How are you and Mike?
Mike and I are fine. We are back in survival mode. Kind of can’t believe that this is happening. Disappointed and discouraged, but haven’t had a whole lot of time to think about it.
Where is Patrick?
Patrick is going about his day at school and will be loved on by the grandparents! He was here with us the WHOLE day yesterday and was such a good kiddo! Love that boy!
What can I do? What do you need?
You can pray for a quick recovery for Katy Girl! Right now we don’t need anything if that should change we will let you know.