Friday, July 23, 2010

Admission to Children’s

DAY 1 July 22 2010

Today we spent most of the morning cleaning and packing for our stay at Children’s and Patrick’s stay at Auntie Dars, and then Auntie Melissa’s ( So happy he is such a good boy)

We arrived at Children’s around 3:00…which was great timing since our room was ready and waiting and we were able to get the B side the inside bedspace in the shared room, which gives just a teeny tiny bit more room, because The Murphy’s aren’t light packers.

Mike got us all settled in, while I went to Parent coffee hour. Then it was time to insert the oh so lovely NG tube… Katy was given Ativan which always makes her a bit interesting. Then her and daddy were off to the treatment room.

I think its great that anytime they have a “procedure” to do ex. blood draw, feeding tube, etc. etc. they take them to a seperate room. That way her bed space is a safe and comfortable place. I had a super special surprise waiting on Katy’s bed when she came back with her new accerorie. We have a WHOLE HUGE bag of goodies, for our brave little princess. Let me tell you she DESERVES each and every trinket she gets. She just continues to prove to be a rock star!!!

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Katy had a difficult time falling asleep…and didn’t end up falling asleep until 11:30 PM!! We were then disturbed at 4AM with an admission and Katy girl was up for the day!

Cuddling with her Daddy –O… Such a daddys girl!!


Children’s Admission

Day 2 July 23 2010

Katy tolorated her overnight feeds just fine. Her chest xray did show that she had some extra fluid in her lungs, which is not a great thing, but can easily be fixed with some adjustments to her lasix. So the team is working on that. As predicted she is not eating as much in the hospital as she does at home, but that is to be expected.

Mike and I met with the team and signed all the necessary paper work to list Katy… the plan is still that she will be listed this admission. Sureal.

Katy and I were both exhausted and took a good 2 hour nap snuggled in her crib…




nicole girard said...

Amiee you have such a brave little girl ! You should be very proud of yourself and your rockstar ! i have been reading and following your blogs its nice to find out how people are and their lives now. i wish there was any way to take away your rockstars pain... its just not fair by any means. i wish you all the best of luck and many prayers ! Love to all !

Nicole said...

thinking of you all!!! Please let me know if you need anything.

ShannonLeideker said...

Just wanted to say hello, I found your site through Gabriellas Heart. Katy is just precious! She will do amazing with a new ticker. I look forward to following her journey and will be praying for her. God Bless!

Madi's Mended Heart

Deborah said...

Thinking of you and your family and especially Katy. Prayers for your little rockstar!