Tuesday, November 29, 2011

Delicate Balance

Katy was seen in clinic today, after a few questionable days of tiredness, being extremely thirsty and not much eating we knew it was time to visit the team.
As we suspected the labs confirmed that Katy is once again headed towards congestive heart failure.  It breaks my own heart to write those words.  It’s just so hard…she can be so good looking great running around the house and the next she is asleep in her chair. 
As of now the plan is to admit Kate on Thursday for another “tune up”.  They start her on Milrinone for 5-7 days and then we will hopefully be home in time for all the Christmas Festivities. 
Katy has never followed the typical treatment path.  When it comes to Congestive Heart Failure she is playing by the book.  This is the typical  path prior to transplant.  Basically it is a horrible roller coaster ride of admission for 1 week home for 1 month, repeat.  Eventually the time between admissions will get shorter until eventually her heart is completely dependent on the Milrinone and we wait in house for a heart.
All I want for Christmas is a donor heart…

6 comments:

The Simmons Family said...

We'll be praying that Santa delivers a heart!!

Amanda Dale said...

I am stopping by from MMS. Thanks so much for sharing your story. Your family and little Katy and in my thoughts. Hope the hospital stay is short and the arrival of a heart is quick.
Thanks,
Amanda

Jenny said...

I am praying for your daughter to get a heart! What a sweet girl.

Dirt Road Quilter said...

Continued prayers and hugs. Hope it's a short stay and that all of your Christmas wishes come true.

Anonymous said...

Praying for you all. Know that we think of you often.

Love The McDonaghs

Nadya said...

Continuing to pray for you guys!!! Give Katy girl HUGS from me!!! May the Lord give you peace, strength and most importantly a new heart for Katy girl!!!!!