Katy was seen in clinic today, after a few questionable days of tiredness, being extremely thirsty and not much eating we knew it was time to visit the team.
As we suspected the labs confirmed that Katy is once again headed towards congestive heart failure. It breaks my own heart to write those words. It’s just so hard…she can be so good looking great running around the house and the next she is asleep in her chair.
As of now the plan is to admit Kate on Thursday for another “tune up”. They start her on Milrinone for 5-7 days and then we will hopefully be home in time for all the Christmas Festivities.
Katy has never followed the typical treatment path. When it comes to Congestive Heart Failure she is playing by the book. This is the typical path prior to transplant. Basically it is a horrible roller coaster ride of admission for 1 week home for 1 month, repeat. Eventually the time between admissions will get shorter until eventually her heart is completely dependent on the Milrinone and we wait in house for a heart.
All I want for Christmas is a donor heart…