I really don’t know how else to describe what our life is like right now… although I suppose at times it feels more like a nightmare than a dream.
Katy is officially on the transplant list. She is currently listed as a 1B. As excited I am at the thought of a new (well new to us) healthy heart beating in my Katy girls chest… I am scared worried, sad, angry,hopeful and every other emotion that you can imagine I am feeling or I have felt.
I am scared because my sweet beautiful girl has a long road ahead of her.
I am worried, what if the perfect heart for Katy doesn’t come in time.
I am sad for all Katy and our entire family has to endure. I’m sad that we will live in fear of rejection for the rest of our lives.
I am angry…for so many reasons. Trying to be positive right this moment. So I will leave my anger post for another day.
I am hopeful, because our team at Children’s gives us a lot of hope that Kathryn will be very successful post transplant and will go on to live a full and happy life.
Right this moment, I am a bit anxious we are headed to Katy’s first benefit. Hosted by our Murphy/Mulkern family at The Shannon Door. The very talented Jimmy Keys volunteered his time, to do a very special kids show in honor of Katy. I am overwhelmed with their generosity and love, and know that there will be a lot of talk about our Rock Stars heart (obviously) and even though we have been living it for years now…sometimes my emotions become overwhelming.
Looking at today as a day to celebrate our little girl and her special heart!!!