Today we had clinic with Katy. As we left Children’s Hospital I had a much different blog entry written in my head then the one I am about to write. We left Children’s once again with the hope that we had cheated fate and would not be admitted long term until after Christmas.
Dr. Blume was a bit concerned that Katy might have a bit of fluid in her lungs due to some rapid breathing and bit of pulling, and ordered a chest xray to be sure. Nothing a little increase of her diuretics couldn’t handle if need be.
I left with a spring in my step and hope in my heart that once again my little miracle was proving just how miraculous her special heart is.
Then my cell phone rang as I was sitting in traffic on the way home …and once again my theory of “We make plans,and God laughs” ( OK not my quote…but a current favorite) was proved once again.
Katy’s chest x-ray showed that she has some fluid in her lungs i.e.she is in Congestive Heart Failure. Basically this was completely unexpected…but at the same time completely expected. Meaning we know that this is how it goes, we know that it is miraculous that this is her first bout with it. Clearly up until this point she has been well regulated with an army of meds that
are were doing exactly as they should.
Katy’s labs also showed that her potassium levels are dangerously low. This is due to her current doses of diuretics. Which unfortunately makes the plan to increase her dosage not an option. So what do we do??
Well it was decided that Katy is stable… and we have the next few days to pump up her potassium levels through orange juice and bananas…. we are going in on Friday for labs and are planning a short term admission on Tuesday… to dry her out and give her heart a chance to rest (via IV meds.)
Any prayers or good thoughts you can offer our family (especially Miss Kate) are much appreciated. I hope we can make it through the week… but, fully expected to trick or treat on 8 East!!