written @ 3pm
Katy had a good evening. ( Once we got that screaming infant out of our room)
Late night was a bit rough her…around 1AM her 02 stats kept dropping…at times in the low 80’s. She had been sitting right around 96 and to be honest I wasn’t a fan my heart baby is always in the 98-100 range. Clearly just another reminder that we are in a whole new ball game.
Doctors came and listened and an EKG was ordered and given at 2AM…UGGGGGGGGHHHHH. They also gave her, her first ever neb treatment… the nurse was shocked that with her complex medical condition she has never had a neb. As I have said in the past…she is writing the book. Which up until this point has been great…since she has been much healthier than kids with her diagnosis… now it is just scary because we have no idea how this is going to play out.
Finally we both got some sleep…
During rounds there was some speculation that Katy could be dealing with a respiratory infection. Which could be the cause for the extra fluid on board. No one really thought that was the issue… but we need to check everything…so while we waited on the results of that culture we were placed on precautions as a precaution and earned ourselves the Pent House. (Huge Private room)
Daddy came up and Katy & I both took about a 2 hour nap.