Thursday, April 29, 2010

Kate’s Cardiac Appointment

April 29, 2010

You all know how much I dread Cardiac Clinic weeks, and this week was no different I spent a lot of time crying, worrying and even did my fear share of vomiting. 

Well today came, and my dad came to watch Patrick (thanks again Papa)  and off we went!!

We arrived at Children’s and Kate was acting her like her sweetest self…so much so that she convinced the nurse that she wouldn’t need a sedated echo.  HA!

So we head to the echo room and Kate is doing great happy as a clam in my arms.

Time to lay her on the tale…she LOOSES it!! In her defense since we were planning on a sedated echo we took measures to help make the echo as successful as possible.  Meaning we put her to bed late, woke her up early and she hasn’t had anything to eat or drink besides a sip of Pedialite at 745AM…at this point it was 11AM and she was a bear. 

So it was decided that it would be best to just sedate.  Thankfully from the measures we took, it worked quickly and within 15 miniutes she was snoozing in my arms.  I transferred her to the bed and the echo began.

After the echo and met with Kate’s cardiologist Dr. Marx. We talked about Kate and how we thought she was doing, and then he took a listen and everything looked and sounded the same.

However, Dr. Marx was very concerned about Kate’s weight.  She hasn’t gained an oz since we saw him in November.  She weighs 19lbs 20 oz. He has to assume that this is because of poor heart function.

So it was decided that Kate would have a Cardiac Cath and Cardiac MRI which Kate has had in the past and our relatively simple procedures to get pressures in her heart and look for scar tissue.  A biopsy of her heart will also be taken at this time. 

If these test show what Dr. Marx is thinking…Kate will be listed in Heart Failure and passed on to that team…meaning the transplant team. 

I know its not a surprise, I know its something we all knew and prayed wasn’t going to happen.  But, it appears we are not going to catch a break that big.

So for now we just wait and see… We really won’t know anything new until after her cath.

We are still praying for a miracle. 

amiee_siggie

 

7 comments:

Beverly said...

Amiee
I love you all and will keep you in my prayers. Kate is an amazing little girl and I am in awe of her strength as well as yours. Love you a ton
HUGS

Kendra said...

I will keep your sweet girl as well as your entire family and the medical staff in my prayers! I will continue to pray for a miracle but sometimes the miracle is a successful transplant.

Nicole said...

Kate is so lucky to have such an amazing support team around her. You are a terrific mom and you are all in my thoughts and prayers. Please don't ever hesitate to let me know if there is anything I can do.

Meg Halter said...

(((HUGS)) to you, Mike, Kate and Patrick. Keep on keepin' on. Prayers for you for Kate's health. Like you said she has already beaten so many odds. You obviously have a little fighter there girl!

Peggy D said...

I'll be praying for your miracle, too. What a difficult thing to hear! Although your darling daughter is so tiny, she LOOKS so healthy.

Try to remember that our Lord loves her even more than you do. Hard to imagine, isn't it?

McKay Family said...

Hang in there...I can't even imagine what you are going through nor do I even have words that could possibly provide comfort. Just know that I will be thinking about you guys and praying for that miracle!

Karen said...

{{HUGS}} Amiee, Mike, Patrick & of course Katy! You're in good hands at Childrens...healthy thoughts and prayers for your little princess!