It’s not like this was a surprise. Mike and I were both fully aware that this was most likely going to happen, in fact we both thought it would have happened long before now. However, we also thought that his leg of the journey would be behind us and we would be focusing on Katy and her new heart.
Thank you for all the kind words, encouragement, offers and for once again reminding us that we are not alone. So many of you have asked how you can help, what you can do, etc. I am so thankful each time I log on I am flooded with kind words and “What can I do to help”
The truth is I don’t really know yet. We don’t have a definite date yet we know it will be mid June after June 15th. (As long as Katy stays healthy") We don’t know how long we will be admitted for because we have no idea when a heart will come for Kate. We do know that as a 1A we are 5 times more likely to get a heart than we are as a status 1B.
For some reason I am not as worried or anxious about Katy and her new heart and getting there… I know what it is, I know what is expected and I can do that. I feel I can take care of that… that is something I can do it will be hard…but Katy will get me through that piece I get so much strength from that little Rockstar!
What scares me is everything else….
Patrick and making sure he is well taken care of and making sure he feels secure and comfortable and that his world is not turned upside down.
Laundry, cleaning, cooking, eating all the everyday things that we do that still need to be done while facing this life altering event.
My pride…is gone. I had to learn a long time ago to accept help and be grateful and thankful. I have also learned that it is just easier for everyone if I tell you what are needs are than having you try to guess and ending up with 10 visits on one day and 30 sets of crayons.
The Helping Hands site is up and ready to go when we do… so we should be set for meals.
I did set up an Amazon Wish List and I have to say I am not 100% comfortable with that… So I am not really sure if I will keep that going.
The Be A Rock Fund is a great source to help with meals, gas, parking and all the incidentals.
I never want to be greedy… I am thankful for every.single. thing that has been done for our family. I do know that as a mom I will do whatever it takes for my family and right now that means swallowing my pride and letting our village take care of some things for right now.
I can not wait until Katy gets her greatest gift of all and we can begin to Pay It Forward.
I have great plans for The Be A Rock Foundation.
You are all Rockstars in our eyes.