Tuesday, May 29, 2012

Weekends like these get us through the tough days!

We made a deposit this weekend in the good times that make it all worth while.  We made some memories, memories that will get us through the rough days, weeks, dare I say months ahead of us.

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We spent yesterday with our Riley Favorites…. the kids had a blast jumping and playing with their cousins and Mike and I enjoyed catching up and feeling the support from our extended family.  We loved seeing how the babes have all grown…and looking at prom pictures.  Just a great day was had by all.

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Today we were able to cross another item off of our ‘Before Katy’s Admission”  Bucket List…we went to visit our favorite boys of summer… at Fenway Park.  Boy, did this day deliver.  What a Gorgeous day day for a ball game. We were gifted some amazing tickets from a dear friends mom’s company…. A Big Shout out to FW WEBB!

Song: A Fine Frenzy What I wouldn’t Do

Friday, May 04, 2012

Finding Our Way

It’s not like this was a surprise.  Mike and I were both fully aware that this was most likely going to happen, in fact we both thought it would have happened long before now.  However, we also thought that his leg of the journey would be behind us and we would be focusing on Katy and her new heart.

Thank you for all the kind words, encouragement, offers and for once again reminding us that we are not alone.  So many of you have asked how you can help, what you can do, etc.  I am so thankful each time I log on I am flooded with kind words and “What can I do to help”

The truth is I don’t really know yet.  We don’t have a definite date yet we know it will be mid June after June 15th. (As long as Katy stays healthy")  We don’t know how long we will be admitted for because we have no idea when a heart will come for Kate.  We do know that as a 1A we are 5 times more likely to get a heart than we are as a status 1B. 

For some reason I am not as worried or anxious about Katy and her new heart and getting there… I know what it is, I know what is expected and I can do that.  I feel I can take care of that… that is something I can do it will be hard…but Katy will get me through that piece I get so much strength from that little Rockstar!

What scares me is everything else….

Patrick and making sure he is well taken care of and making sure he feels secure and comfortable and that his world is not turned upside down.

Laundry, cleaning, cooking, eating all  the everyday things that we do that still need to be done while facing this life altering event.

My pride…is gone.  I had to learn a long time ago to accept help and be grateful and thankful.  I have also learned that it is just easier for everyone if I tell you what are needs are than having you try to guess and ending up with 10 visits on one day and 30 sets of crayons. 

The Helping Hands site is up and ready to go when we do… so we should be set for meals. 

I did set up an Amazon Wish List and I have to say I am not 100% comfortable with that… So I am not really sure if I will keep that going. 

The Be A Rock Fund is a great source to help with meals, gas, parking and all the incidentals.

I never want to be greedy… I am thankful for every.single. thing that has been done for our family.  I do know that as a mom I will do whatever it takes for my family and right now that means swallowing my pride and letting our village take care of some things for right now.

I can not wait until Katy gets her greatest gift of all and we can begin to Pay It Forward.

I have great plans for The Be A Rock Foundation.

Thank you!

You are all Rockstars in our eyes.

Much Love,

The Murphy’s

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Tuesday, May 01, 2012

And the hits keep coming!

I apologize if this post is rambling... Katy had a routine clinic appointment with an echo. No real changes on ech were reported... We were planning for a cath in June and we added an MRI...we also learned that it is time to admit Katy into the hospital to continue to wait for her heart.

We always new this was a pos...
sibility...we just prayed we would get a heart sooner.

Life for us is hard even on a good day. I was just finally seeing some happiness. I graduate I. May and was looking to head back to work in the fall and try to repick up the pieces. So obviously that isn't going to happen.

Now I am just in constant fear. Fear Katy won,t get a heart in time, fear for Patrick's childcare spot, fear of not being able to pay our rent due to the extra expenses of hospital stay. When we were last admittedly we had a bit of a cushion in the be a rock 4 Katy fund.we have none. Im scared and I hate that That we have been a charity case for the last 3 years...and as much as I hate that. I don't know how we will do this without help the gas and parking alone kills our budget. I know it is what it is but I can't imagine this life withou Katy...she is such a bright spot for all of us. Please pray things are about to get a whole lot harder.